Down syndrome information now must accompany Down syndrome diagnosis

 

Submitted by Kelly Henry, MS, RHIT, Director, Performance Improvement and Regulatory Affairs

 

Pennsylvania has recently joined a growing number of states requiring that a Down syndrome diagnosis for new or expectant parent(s) be accompanied by useful, accurate information about the genetic disorder.  The Down Syndrome Prenatal and Postnatal Education Act, recently signed into law by Governor Corbett, specifies the information from the PA Department of Health that doctors must read to the parents.  This information, Down Syndrome Prenatal/Postnatal Education, includes:

 

  • up-to-date, evidence-based information about Down syndrome that has been reviewed by medical experts and national Down syndrome organizations
  • contact information regarding support services and programs

 

The law is referred to as “Chloe’s Law,” in reference to an 11-year-old Pennsylvania girl with Down syndrome whose father helped advocate for the policy.

 

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